14
Sep
Recent posts
24
Aug
Paul Ford, @ftrain
No words are more painfully optimistic than “just send me what you have.”
07
Jul
Headed Back to the Hospital
Nora is headed back to the hospital tomorrow for an overnight Video EEG.
Over the past week, she’s had
1 min read
21
Jun
Father's Day
Nora has been seizure-free for two months and one day. She’s taking her Topamax
twice a day, Prevacid once
1 min read
10
Jun
Summer Garden
[https://www.flickr.com/photos/clayandjackie/albums/72157657676659986]
1 min read
03
Jun
Wednesday, June 3
Nora is still seizure-free. She’s completely off of the steroids and on her full
dose of Topamax. She’s
2 min read
21
May
Thursday, May 21
Good news today: Nora had a 4-hour video EEG and Dr. Shiloh didn’t see any
seizure activity. In fact,
2 min read
15
May
Friday, May 15
Today is the eleventh day of Nora’s wean off of steroids. After we left the
hospital, she was on
2 min read
08
May
Friday, May 8
It’s been three weeks since we went to the hospital with Nora. The next Monday,
Jackie’s birthday, the
2 min read
04
May
Monday, May 4
The quick version:
* The steroids worked. The events that we’ve seen over the past two weeks are
not seizures.
2 min read