Monday, April 27

Nora had an episode yesterday afternoon and mid-morning today. As planned, her neuro team at UNC will be increasing her steroid dose 50% starting tomorrow. That will last for another week, and then we’ll start weaning her off of the steroids. If that doesn’t resolve her seizures, we’re start looking for another anti-epileptic medication while we wait for the results of the genetic testing.

The side-effects of the steroids continue. Zoe has also been more irritable, both dogs have pooped in the house, and this guy, Dad-o, has a bit of trouble with it all. However, mom/Jackie is the superhero of the place. She’s our glue. SuperGlue.

Second opinion visit with Duke neurology on Thursday.