21
May
Thursday, May 21
Good news today: Nora had a 4-hour video EEG and Dr. Shiloh didn’t see any
seizure activity. In fact,
2 min read
Recent posts
15
May
Friday, May 15
Today is the eleventh day of Nora’s wean off of steroids. After we left the
hospital, she was on
2 min read
08
May
Friday, May 8
It’s been three weeks since we went to the hospital with Nora. The next Monday,
Jackie’s birthday, the
2 min read
04
May
Monday, May 4
The quick version:
* The steroids worked. The events that we’ve seen over the past two weeks are
not seizures.
2 min read
03
May
Sunday, May 3
Nora had a few episodes over the weekend. They’re very slight and easy to miss.
We’re paranoid and
1 min read
30
Apr
Tuesday, April 30
Nora had a good day today. She may have had two episodes but they were so
slight, we’re not
1 min read
29
Apr
Wednesday, April 29
Day 2 of the increased dosage on steroids; Nora had two episodes yesterday and
two more today. She’s still
1 min read
27
Apr
Monday, April 27
Nora had an episode yesterday afternoon and mid-morning today. As planned, her
neuro team at UNC will be increasing her
1 min read
25
Apr
Saturday, April 25
We didn’t see that Nora hadanyepisodes today – we could have missed something,
of course. Nora was a good bit
24
Apr
One Week
One week ago we went into the ER with Nora. Since then, it feels like we’ve been
punched in
1 min read