03
May
Sunday, May 3
Nora had a few episodes over the weekend. They’re very slight and easy to miss.
We’re paranoid and
1 min read
Recent posts
30
Apr
Tuesday, April 30
Nora had a good day today. She may have had two episodes but they were so
slight, we’re not
1 min read
29
Apr
Wednesday, April 29
Day 2 of the increased dosage on steroids; Nora had two episodes yesterday and
two more today. She’s still
1 min read
27
Apr
Monday, April 27
Nora had an episode yesterday afternoon and mid-morning today. As planned, her
neuro team at UNC will be increasing her
1 min read
25
Apr
Saturday, April 25
We didn’t see that Nora hadanyepisodes today – we could have missed something,
of course. Nora was a good bit
24
Apr
One Week
One week ago we went into the ER with Nora. Since then, it feels like we’ve been
punched in
1 min read
23
Apr
Thursday, April 23
Another good day for Nora. We only noticed one episode, and it was very subtle.
It’s possible that we
1 min read
22
Apr
Today was a good day!
Today was a great day for Nora! She has now had five doses of her steroids since
Monday night. Today,
2 min read
21
Apr
Home Again
That’s Nora during the ride home. Let’s talk about this picture:
* She’s wearing Zoe’s sunglasses because
2 min read
20
Apr
The Beginning
Our first recap of this whole thing, working on talking about this without
getting emotional, but I’m not there
2 min read